EUTOS Spread of Excellence Work plan  · 

Work plan for Spread of Excellence

The following measures are planned:

Core resource

The core resources provide a complete introduction and guide to the ELN projects on CML and contain a tailored pack of agreed content for hematologists.
Contents include:

• Educational slide set for use by physicians
• ELN registry guidebook: the guidebook will provide comprehensive information for any physician wanting to become involved in enrolling patients in the registry. Content will cover aims and objectives, a practical guide to entering patient information onto the Registry and accessing testing facilities etc., FAQs and technical information. The guidebook will be pocket-sized for convenience
• Poster in different languages for main European CML centers (and exhibition booth)
• Flyers in different languages for main European CML centers (and exhibition booth)
• Reprint of ELN recommendations on pocket card summarising key points from ELN recommendations paper
• Reprints of publications

The core resources will be designed in 2007 and updated each year.

Newsletter

The regular already existing ELN newsletter targeting ELN members and the wider hematologist community will be extended by one/two pages focused specifically on CML and items related to the four subprojects of the alliance (e.g. reports that include all relevant information from the subprojects, summary of the practical and technical information, relevant website addresses, summaries of CML data presented at recent hematology meetings, highlights of recent key CML publications). The newsletter will be published half-yearly.

Dedicated portal website

A dedicated EUTOS for CML website has been established from the existing ELN website with links to other sites of interest such as the Novartis website. This portal website is subdivided into separate areas for each of the four EUTOS for CML subprojects. The area of the site dedicated to the Spread of Excellence is a repository for the core resource and supplements the print and meeting-related communications. The portal website was opened in 2008 and the content is updated continuously.

Exhibition booth

Exhibition booths at key congresses provide an opportunity to continue raising the profile of the EUTOS for CML project amongst the healthcare community. They provide a place for:

• meeting experts in the field to discuss the management of CML
• demonstrating available resources supporting the project including the website
• providing physicians with reprints of relevant publications to support their education
• highlighting key clinical data

Key international congresses included the Annual Meeting of the American Society of Hematology (ASH), the Annual Meeting of the European Haematology Association (EHA) and the Annual Meeting of the German Society of Hematology and Oncology (DGHO).

Expert steering group with forum meetings to roll-out to countries

Build a dynamic and well-respected global advocacy steering group to disseminate consistent key messages to the wider community:

• gain KOL endorsement of messages and educational activities
• help shape and endorse educational content for faculty development, advocacy and communication activities for global, regional, national and local meetings
• provide practical support in terms of planned activities, such as authors of articles, spokespeople and presenters

Scientific and educational meetings

a) One to three meetings per year at selected key congresses and meetings together with the ELN will be organized. Content will focus on scientific questions being addressed by the four subprojects.
b) A preceptorship program offering high-level educational experience to a small group of physicians on country-level together with local KOLs and Novartis offices will be established with the following objectives:

• educate physicians on the registry program
• challenge misconceptions and address concerns
• maximize enrollment in clinical trials
• create new contacts and relationships

A proposed meeting in 2007 will be Budapest 2007 (organized by the alliance) Meetings 2008 are:

• ELN meeting in Heidelberg (organized by ELN)
• EI-CML (organized by ELN)
• N. N. (organized by the alliance)

Preceptor ship programmers have to be determined on national levels. For Germany a program could be organized in June 2008 (with Novartis, Germany) in conjunction with the German CML Study Group meeting.

Publication plan specific to ELN-related projects

The objective is to publish scientific results by the four subprojects and editorials in high impact journals. This cannot be determined in detail due to uncontrolled influence.
Further publications:

• updated ELN recommendations
• scientific bulletins focused on a specific scientific topic related to the management of CML to supplement the existing ELN recommendations
• local articles
• PR activities (press releases)

Created by: A. Hellenbrecht , generated 2007/12/19 , last changed: 2008/08/21